Telluride Adaptive Sports Program Skis With 8-Year-Old With Ultra-Rare Disease
Aiden Steiner is a 9-year-old who loves playing, adventures, and being outside - but Aiden has a disease that prevents him from doing many of the things he loves. In 2024, he was diagnosed with a genetic, neurodegenerative disease called INAD, Infantile Neuroaxonal Dystrophy. Children who are diagnosed lose their ability to walk, talk and swallow, and eventually, breathe - and most don't live past 10.
His parents are working toward a solution through their foundation, AJS Foundation, and working with the INADcure Foundation in New Jersey. In the meantime, they're trying to enjoy life with Aiden, so they took him skiing in Telluride with the Adaptive Sports Program! Check out the full article in People Magazine below.